Posts

Happy Valentines Day

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I decided to write a valentines inspired blog all about dating. If you live with a chronic illness or if you’re seeing someone with a chronic illness, the chances are the whole dating process is probably going to be a little different. Whether you’re looking for something more casual or hoping to meet someone you’ll settle down with, dating can of course have its ups and downs. 
Being single and trying to navigate your way around the world of dating is challenging for everyone these days, but it can be especially difficult when your life comes with additional complications. Therefore, finding someone who will support you through life's ups and downs will take time, so be patient! You will find that person who will love you unconditionally - even on your bad days.
Whether you have a chronic illness or are dating someone with a chronic illness, I've written some tips to try and make dating that little bit easier. However, please note I am anything but an expert with regards to thi…

Already tired tomorrow...

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When fatigue hits, it really hits!
If you struggle with chronic fatigue, you will understand completely. You’ve more than likely been in a situation where you’re trying to express how you feel and a person responds with, “yeah, I’m tired today too.” Of course, everyone gets tired from time to time but the problem with this response, and the reason it can be frustrating to hear, is because chronic fatigue is so much more than just feeling “tired."


Chronic fatigue can be a symptom of a wide variety of chronic illnesses, and is different than chronic fatigue syndrome / ME. According to the National MS Society, 80% of people with MS have fatigue. Chronic fatigue may involve feeling tired, but the exhaustion is generally more severe and debilitating than the tiredness a person may feel after just not getting enough sleep one night. Chronic fatigue can also bring on other symptoms including pain, tremors, sensitivity or brain fog. This can make it difficult and at times impossible to go …

Look at how far you've come!

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Probably should've done this blog earlier but it's been a busy Christmas / New year period. However, the past month, I have been thinking back a lot on 2019. Firstly consider: How was your 2019? Was it a good year for you? What did you achieve that you are proud of? More importantly, did you take time to recognise your achievements?
We celebrate a lot of things in life - birthdays, anniversaries, holidays, and so on. But when it comes to our accomplishments, we don't celebrate them all the time. Why?
Of course, we cannot change what has happened in the past so we should always aim to focus on enjoying the present and do everything we can to create an even better future. I'm therefore not saying that we should be constantly focusing on the past, however in order to appreciate how far we have already come, it's important to sometimes look back.
I am literally the first to admit that nothing I do is ever good enough for myself. I constantly have goals but as soon as I me…

LONDON MARATHON

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So, I've signed up for my biggest challenge yet!!
One thing I said to myself when I was first diagnosed with MS was that every year, I would do something which was completely out of my comfort zone. In 2019 I did a skydive and in 2020 I will be running the bloody LONDON MARATHON. I wanted to do things that I would never have done without my diagnosis, all to raise money for the MS Society UK. The MS Society is a wonderful charity who support myself and so many others living with MS. Everything they do is made possible by donations from supporters - whether its fundraising for MS research, providing a kind voice at the end of the phone, helping people make sense of their diagnosis, giving grants to people who need them most or providing activities for people with MS and they couldn't do it without your help.

I also think that doing something like this is a great way to raise awareness. My announcement of the skydive I did last year was also my public announcement to friends and …

Listen!

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Many people with chronic conditions like MS, keep going even when they know they shouldn't. I am definitely guilty of doing this which I know isn't great because when people with MS push themselves too hard, they are increasing their risk of relapse. What triggers a relapse varies widely from person to person. Of course relapses can occur for no apparent reason due to the illness being so unpredictable. That being said, avoiding some potential triggers whenever possible may help prevent relapse.
For me, lack of sleep, stress and pushing myself too hard are my main MS triggers. Amazingly these triggers then cause my body to send me warning signs. I recently realised that as a result of previous relapses, I have weakness in the left side of my body. So, when I push myself too hard, I trigger my MS and I then get one of two symptoms. The first is I get tingling sensations in my second finger on my left hand. The second is I get pain on the left side of my neck which feels pretty …

MS Friends

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When I was first diagnosed, I knew I wanted to try and make a difference if I could. One thing that I struggled with after my diagnosis was trying to find young people who I could speak to. I found a few people on social media but when I reached out to talk, they never replied. I ended up becoming a part of Trafford and South West Manchester committee group which raises money and hosts events to help people with MS. I absolutely adore this group and I am currently helping to organise their 60th anniversary which will be held in November. As much as I get on with the group, they are all a lot older than me and we are obviously in completely different stages of our lives. I also once went to a 'young persons meet-up' in Manchester which was organised through the MS Society however, I really didn't find this group very uplifting or positive, plus they were all still a lot older than me (!!!)

I then thought that there must be so many other young people all over the UK who feel …

World Mental Health Day

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World Mental Health Day is an opportunity for all of us to raise awareness of mental health issues and advocate against social stigma. So that's exactly what I'm going to try and do with this post...
Mental health is everyone’s business. We all have times when we feel down or stressed or scared. Most of the time those feelings pass, but sometimes they develop into a more serious problem and that could happen to any one of us. Of course everyone is different - some people may quickly bounce back from a setback while others may feel weighed down by it for a long time. Your mental health doesn’t always stay the same, it can change as circumstances change and as you move through different stages of your life.
I've struggled with mental health issues in the past but they have been heightened since my MS diagnosis in April 2018. Depression and anxiety are two of the most common complications of chronic illnesses. It is estimated that up to one third of individuals with a serious m…